How well do you know the facts about Congenital Diaphragmatic Hernia?

How well do you know the facts about Congenital Diaphragmatic Hernia?

1.
What does CDH stand for?
* Cat Dog Horse
* Congenital Diaphragmatic Hernia
* Congenital Diaphragmatic Hernia

2.
What is CDH?
* A severe and often deadly birth defect that occurs when the diaphragm fails to fully form and allows organs into the chest cavity.
* A severe and often deadly birth defect that occurs when the diaphragm fails to fully form and allows organs into the chest cavity.
* A medical disease

3.
What is the survival rate for CDH?
* 50% – 60%
* 25%
* 70%

4.
Which is more common, Left-sided CDH or Right-sided CDH?
* Left-Sided
* Neither
* Right-Sided

5.
What organs are / can be herniated in CDH?
* Diaphragm, Lungs, Stomach, Liver, Intestines, Spleen, and more
* Any organ in the body
* Diaphragm, Lungs, Stomach
6.
What are the odds of a baby having CDH?
* 1 in 2000
* 1 in 5000
* 1 in 2500

7.
What complication is most lethal to CDH babies?
* Small Lungs
* Infection & Pneumonia
* Poor Lung Function

8.
Approximately how many babies are born with CDH every year in the U.S.?
* 500
* 1600
* 1000

9.
Approximately how often is a CDH baby born in the world?
* Every day
* Every hour
* Every 10 minutes

10.
Which is NOT a form of CDH?
* Morgani
* Reynaldi
* Bochdalek

11.
Which gender has a slightly higher survival rate of CDH?
* Female
* Male
* Neither

12.
When was CDH first described in medical books?
* 1575
* 1887
* 1903

13.
In what year was the first successful CDH repair on an infant?
* 1946
* 1893
* 1973

14.
In what year was ECMO (Extracorporeal Membrane Oxygenation) first used on a CDH patient?
* 1988
* 1976
* 1991

15.
In what year was the world’s first CDH Research Group (The CDH Stud Group) and the world’s first CDH Support Group (CHERUBS) both founded?
* 1995
* 1999
* 2002

16.
What causes Congenital Diaphragmatic Hernia in babies?
* No one yet knows.
* Pesticide exposure during pregnancy.
* Drug exposure during pregnancy.

17.
Which of these complications are most common with many CDH survivors?
* Pulmonary Hypertension, Allergies, Feeding Issues
* Pneumonia, Allergies, Asthma, Developmental Delay
* Pneumonia, Pulmonary Hypertension, Allergies, Asthma, Feeding Issues, Developmental Delay

18.
Can you tell what a CDH survivor looks like if you saw one in public?
* They have a funny look to them
* They look like everyone else.
* Only if they had their shirt off and you saw a scar.

19.
Which one of these procedures is more common than the other 2 in 2008 for these children?
* Trachel Occlusion
* Tracheal Ligation
* In Utero Repair

20.
What does ACDHO stand for?
* Alliance of Congenital Diaphragmatic Hernia Organizations
* American Congenital Diaphragmatic Hernia Organization
* American Congenital Diaphragmatic Hernia Office

——————————————————————————————–

Answers Below (don’t cheat!):

1. What does CDH stand for?
Congenital Diaphragmatic Hernia

2. What is CDH?
A severe and often deadly birth defect that occurs when the diaphragm fails to fully form and allows organs into the chest cavity.

3. What is the survival rate for CDH?
50 – 60%

4. Which is more common, Left-sided CDH or Right-sided CDH?
Left-Sided CDH

5. What organs are / can be herniated in CDH?
Diaphragm, Lungs, Stomach, Liver, Intestines, Spleen, and more

6. What are the odds of a baby having CDH?
1 in 2500

7. What complication is most lethal to CDH babies?
Infections & Pneumonia

8. Approximately how many babies are born with CDH every year in the U.S.?
1600

9. Approximately how often is a CDH baby born in the world?
Every 10 minutes

10. Which is NOT a form of CDH?
Reynaldi

11. Which gender has a slightly higher survival rate of CDH?
Female

12. When was CDH first described in medical books?
1575

13. In what year was the first successful CDH repair on an infant?
1946

14. In what year was ECMO (Extracorporeal Membrane Oxygenation) first used on a CDH patient?
1976

15. In what year was the world’s first CDH Research Group (The CDH Study Group) and the world’s first CDH Support Group (CHERUBS) both founded?
1995

16. What causes Congenital Diaphragmatic Hernia in babies?
No one yet knows.

17. Which of these complications are most common with many CDH survivors?
Pneumonia, Pulmonary Hypertension, Allergies, Asthma, Feeding Issues, Developmental Delay

18. Can you tell what a CDH survivor looks like if you saw one in public?
Only if they had their shirt off and you saw a scar.

19. Which one of these procedures is more common than the other 2 in 2008 for these children?
Trachel Occlusion

20. What does ACDHO stand for?
Alliance of Congenital Diaphragmatic Hernia Organizations

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