ACDHO – The Alliance of Congenital Diaphragmatic Hernia Organizations
Alliance of many CDH Organizations supporting families and research of Congenital Diaphragmatic Hernia. This listserv is for organization founders, presidents and CEO’s to keep each other abreast of research studies, new procedures, and organization problems. By working together as a team we can support each other, and the babies and families, in the fight against CDH.
These are the CDH organizations that truly support these babies and work together. We are a large Global CDH community working to increase research, make sure that all families have information and support and protect CDH awareness so that it belongs to all.
Each organization in ACDHO is equal, there are no leaders. Organizations / groups / sites invited into ACHO have shown high integrity in helping CDH families, offer research or support for CDH and a clear desire to work with the entire CDH community. Invitations are by a majority vote to secure that ACDHO goals remain positive, that the group works well together and that ACDHO is a safe environment to work together to help CDH families.
This listserv / alliance is *not* for individual CDH parents, survivors, etc. Please join the various groups and organizations for CDH information, support, research and awareness that offer services at the member level for CDH families.
Organizations / sites / groups that are members or who have been invited and that show a high degree of integrity in helping the CDH community and that we support are:
A Rainbow of Hope
Jack Ryan Gillham Foundation
Olivia Raine Foundation
Kays Kids / Real Hope For CDH
Johns Hopkins Unnamed CDH Group
The J.C. Nicholson II Research Foundation
En Stitching Hernia Diafragmatica (The Netherlands)
Ernia Diaframmatica Congenita gruppo di supporto (Italy)
Association Hernie Daphragmatique (France)
International CDH Study Group
Toronto Children’s Hospital CDH Clinic
UCSF Fetal Treatment Center
Boston Children’s Hospital / Harvard University CDH Clinic
CHOP CDH Clinic
Wisconsin Children’s Hospital
Vanderbilt Children’s Hospital
St. Louis Children’s Hospital / Washington University CDH Research
University of Florida, Shands, CDH Clinic
Please show your support to these groups and organizations who support CDH families!