Right now, as I sit here on this beautiful spring day enjoying a sandwich and working, I am so thankful for my blessings. But as I sit here, I know I take for granted that somewhere this moment is devastating to someone.
Right now, some one is hearing the words “Congenital Diaphragmatic Hernia” for the first time. And their life will never be the same.
Right now, a couple that went into an ultrasound appointment hoping to find out if their baby was a boy or girl now longer cares what gender their baby is. They just want their child to survive.
Right now, in a pediatric intensive care unit, somewhere a mom is sitting beside her newborn and trying to barter with God for her baby’s life.
Right now, a family is praying that their baby will fight off an infection and make it through the night, pacing the hospital waiting room and waiting for test results. And praying that the antibiotics don’t do more harm than good.
Right now, a family sits in the OR waiting room, waiting for news about their child’s CDH repair or chest tube placement or Nissen or G-tube placement. Hoping that their baby will be able to come off the ventilator easily after surgery.
Right now, a mom sits at home with child, crying because she is so frustrated that she can’t get her baby to eat by mouth. Again. And worried that the feeding tube she uses to make sure her child gets enough calories will always be there.
Right now, a couple tries to decide if it’s wise to take their child to a playground because they are terrified he / she will pick up a virus that could devastate their already fragile lungs. So they sit at home in isolation. Again.
Right now, a couple sits in a Ronald McDonald House, waiting for visiting hours to go see their child. And so thankful that they have a place to stay and other families to talk to. But it’s not home and it’s not a situation they ever wanted to be in.
Right now, a mom is lovingly taking care of her child’s scar; cleaning and re bandaging it. But it’s not from falling off of a bike or stumbling playing hop-scotch. It’s from a major surgery and it will be scar is that is always there, even after it’s healed.
Right now a dad is waiting for x-ray results, hoping against hope that his child hasn’t reherniated.
Right now, a family is sitting in a funeral parlor choosing a casket and trying to decide where to bury their baby that they never got to bring home.
Every 6 minutes a child is diagnosed with CDH.
The time to find the cause and prevention of CDH is right now.