CHERUBS New CDH Family Support Fund

CDH Family Support Fund – this fund covers all support services, including our web sites, newsletters, conferences, New Member Packets, get-togethers and other general operating costs. CHERUBS does a lot for CDH families and the CDH community and we incur quite a few costs during so. Just 1 newsletter mailing is now over $3000 for printing and posting with so many members. Our conferences are also expensive. Our monthly expenses are several hundred dollars for ink, postage, web site hosting fees, fax number, etc. It takes a lot to fund an organization with almost 3000 members. Remember, no one at CHERUBS gets paid and we have no office so every penny directly helps CDH families. And all of our services are FREE so we do charge membership fees. Only 2% of our members donate annually so we depend on public donations quite a bit. And the occasional grant as well.

  • $1 will cover 1 2-pocket folder
  • $1 will cover 1 copy of our Parent Reference Guide
  • $5 will cover 1 newsletter printing and US postage
  • $10 will cover 1 New Member Packet
  • $50 will cover our annual non-profit state registration fee
  • $50 will cover envelope costs for 1 year
  • $50 will cover our volunteer software for 1 month
  • $100 will cover staples, paper clips, glue, etc for 1 year
  • $100 will sponsor 1 hospital with CDH info for 1 year
  • $125 will cover web site hosting fees for 1 month
  • $300 will cover 1 local get-together
  • $400 will cover printing 5000 brochures
  • $500 will cover outside programming fees
  • $2000 will cover non-newsletter postage fees for 1 year
  • $3000 will cover 1 newsletter printing and mailing
  • $5000 will cover 1 international member conference

CHERUBS Wish List

CHERUBS subsists off of donations. Though we are trying, we currently are not receiving any grant funding and all donations go to help us continue our work in research and offering services and information to families and medical-care providers of children born with Congenital Diaphragmatic Hernia. We are run strictly by volunteers, no one gets paid for working for CHERUBS, so every penny of your donation will directly help families. CHERUBS is an IRS recognized 501(c) Non-Profit Organization and all donations are tax-deductible.

Monetary Donations
Printing Sponsors
Event Sponsors
Adopt A Hospital Sponsors
Volunteers
2-pocket folders
Postage Stamps
Printing Paper
CDH Awareness Ribbon Pins
Copies of “Stories of Cherubs”
CDH Education Posters
CDH Awareness Bracelets
Journals / Notepads*
Baby Booties*
Baby Blankets / Quilts*
Baby Caps / Hats*
White / Natural Cotton Tote Bags*
Chapsticks*
Small bottles of lotion*
Small bottles of hand sanitizer*
Travel Kleenex*
Disposable Cameras*
Pens*
Newborn Button up T-Shirts*
Restaurant Vouchers*
Gas Cards*
Kid’s Books*
Puzzle Books*

*for Gabe’s Gifts bags for new and expectant parents

If you can donate any of these items, please send them to:

CHERUBS
3650 Rogers Rd. #270.
Wake Forest, NC 27587
USA

Donations are tax-deductible and much appreciated to help us continue to help CDH families!

CHERUBS Celebrity Spokesperson – Meet Rene Couret

Rene Couret is a plus-size model, actress, entrepreneur and student, currently residing in Southern California. She is studying Musical Theatre and American Sign Language. In her spare time, Rene runs several websites including a CDH birthing options activism site. She also loves giving advice on vegetarian healing diets, whole food nutrition, and self-image issues. Rene has appeared in the movie “Phat Girlz”, appeared in many stage productions and is very involved in Hollywood’s “Love Your Body Day”.

Rene’s son ,Gregory Zion Couret ,was born August 3, 2004 with a Morgagni (or right-sided) Congenital Diaphragmatic Hernia. When Gregory died at six months of age, it was a bittersweet experience. Rene felt it was her greatest source of pain but he was also her greatest source of inspiration.

When Gregory was born he was rushed right away to the NICU. He had a right-sided hernia, which causes more trouble due to the liver piercing into the right lung and pushing over the heart. He was only breathing about 30% on his own and he needed the assistance of a Ventilator in order to keep him alive. He was placed on ECMO for one week and had emergency surgery to fix his diaphragm after a small brain bleed. He had six surgeries and was taken off and on breathing support more than ten times. In the end his lungs just could not handle anymore and his heart gave up on him. My son was supposed to come home right around Thanksgiving in 2004, but he got an infection and had to heal all over again. My family and I prayed hard, stayed up nights visiting him, and had as much faith as we possibly could. He went through ups and downs and fought his best, but by the time he was six months old he passed away. After my Gregory passed away, I felt as if something was wrong with me and I thought I did something wrong. Maybe I could have done more, or maybe it was karma sneaking up to bite me. I went through many ups and downs in my mind before I could just accept what happened and move on. It is still a process and two years later I have days when the thoughts cripple me and there are times where I feel that it never even happened.

CHERUBS Celebrity Spokesperson – Meet Wendy Petty

Wendy is a celebrity local to the Raleigh – Durham, NC area. I personally met Wendy a few years ago at Duke Gardens and subsequently helped to photograph her wedding (I was a photography assistant at the time). Last year we were looking for volunteers for our Angel Ball and Wendy responded to our ad. She not only volunteered for our Angel Ball but our Golf Tournament as well and is now a celebrity spokesperson for CHERUBS! And if that wasn’t wonderful enough, Wendy, who is also Mrs. Durham County, NC is now using CDH as her pageant platform! We can say we met Wendy at the very beginning of our celebrity career on her way to the top – and on the way to the top Wendy is definitely going!

Some of Wendy’s career achievements so far; Film appearances in “Racing Dreams”; “Absence With Pictures” and “April Fools Day”. She was in Chris Daughtry’s music video “Home”. She has appeared on television on the shows “One Tree Hill”, “Paris Hilton’s BFF” and “Whittaker Bay”. She’s also done quite a bit of local commercials and promotions including playing Diamond Barbie. She is currently on the Nascar circuit as an Ask.com spokesperson. She is Mrs. Capitol City 2008 and Mrs. Durham County 2008 and has represented North Carolina and local towns in the Mrs. NC America 2007, Mrs. North Carolina America 2007, Mrs. Granville County 2007 pageants and was a Miss Hawaiian Tropic Final.. With a huge heart, Wendy is very active with many local charities, including Duke’s Children’s Classic.. Wendy will be at our 2009 Angel Ball!

To learn more about Wendy you can visit her site at http://www.wendypetty.com

“Our Heartbreaking Choices” by Christie Brooks

“Our Heartbreaking Choices”
by Christie Brooks, mom to cherub Madison Brooks

Pregnancies aren’t always perfect. Prenatal testing can reveal life-threatening issues with the baby’s health, which can leave a parent contemplating the unthinkable- ending the pregnancy. Christie Brooks, a CHERUBS member, made the heartbreaking decision to interrupt her pregnancy in 2003 when her baby was diagnosed in utero with a left-sided diaphragmatic hernia. Through online support networks she was able to connect with other mothers who made the same agonizing decision, but for a variety of different anomalies. Together they put their stories in a book and self-published it last October. The book, “Our Heartbreaking Choices,” contains the personal stories of 46 women who interrupted their much-wanted pregnancies for medical reasons. The purpose of the book was to share their stories in the hopes of helping other parents who have undergone a similar loss to feel less alone, less isolated, and less stigmatized.

This book is available on Amazon.com

http://www.amazon.com/Our-Heartbreaking-Choices-Interrupting-Much-Wanted/dp/0595530478

**CHERUBS is not a pro-life or pro-choice organization. Our mission is to help all CDH families and make sure that they have all the information that they need to make informed choices

Caleb’s Birthday CDH Information Packets


To celebrate her son Caleb’s first birthday on November 5, 2008, Leah Koehn from Wyoming created 35 doctor and parent CHERUBS packets to give to hospitals and doctors in the Steamboat Springs, CO and Denver, CO area. Caleb was born at 39 weeks with an undiagnosed left congenital diaphragmatic hernia. Caleb had a successful hernia repair and is now healthy.

CHERUBS “Adopt A Hospital” Program

Would you like to help families affected by Congenital Diaphragmatic Hernia? Would you like to do something in honor or in memory of a cherub? CHERUBS has created a new program that will soon be helping CDH families across the country.

There are 2 options to our Adopt A Hospital program:

Adoption Plan #1 – You order / print out the list of items below and take them to the hospital. You also become a CHERUBS Hospital Ambassdor for new CDH families at that hospital and you periodically refurnish the materials.

Adoption Plan #2 – You make a $100 donation to CHERUBS and we order and put together the materials and send them to the hospital in honor / memory of your cherub.

CHERUBS Adopt A Hospital Care Package Includes:

1 copy of “Stories of Cherubs” Volume I
1 copy of “Stories of Cherubs” Volume II
1 CDH awareness poster
20 Parent Reference Guides
50 CHERUBS CDH Info Brochures
50 CDH Awareness Ribbon Pins
10 copies of our latest newsletter

Each item (except the CDH ribbon pins) is labeled with a sticker that says “Donated in honor of ________” or “Donated in memory of _________”

These items are then available to all CDH parents admitted into these hospitals. Upon joining CHERUBS, new parents will soon receive more information and support through our Gabe’s Gifts program.

These items are an invaluable source of support and information for families affected by Congenital Diaphragmatic Hernia. Because there are so many hospitals, CHERUBS cannot possibly afford to donate to all hospitals and we are inviting our members and the general public to help us to help CDH families.

If you would like to Adopt A Hospital, please contact us at volunteer@cherubs-cdh.org