CHERUBS “Adopt A Hospital” Program

Would you like to help families affected by Congenital Diaphragmatic Hernia? Would you like to do something in honor or in memory of a cherub? CHERUBS has created a new program that will soon be helping CDH families across the country.

There are 2 options to our Adopt A Hospital program:

Adoption Plan #1 – You order / print out the list of items below and take them to the hospital. You also become a CHERUBS Hospital Ambassdor for new CDH families at that hospital and you periodically refurnish the materials.

Adoption Plan #2 – You make a $100 donation to CHERUBS and we order and put together the materials and send them to the hospital in honor / memory of your cherub.

CHERUBS Adopt A Hospital Care Package Includes:

1 copy of “Stories of Cherubs” Volume I
1 copy of “Stories of Cherubs” Volume II
1 CDH awareness poster
20 Parent Reference Guides
50 CHERUBS CDH Info Brochures
50 CDH Awareness Ribbon Pins
10 copies of our latest newsletter

Each item (except the CDH ribbon pins) is labeled with a sticker that says “Donated in honor of ________” or “Donated in memory of _________”

These items are then available to all CDH parents admitted into these hospitals. Upon joining CHERUBS, new parents will soon receive more information and support through our Gabe’s Gifts program.

These items are an invaluable source of support and information for families affected by Congenital Diaphragmatic Hernia. Because there are so many hospitals, CHERUBS cannot possibly afford to donate to all hospitals and we are inviting our members and the general public to help us to help CDH families.

If you would like to Adopt A Hospital, please contact us at volunteer@cherubs-cdh.org

ACDHO – groups / organizations that truly help and support CDH families and the CDH Community


ACDHO – The Alliance of Congenital Diaphragmatic Hernia Organizations
http://health.groups.yahoo.com/group/acdho/

Alliance of many CDH Organizations supporting families and research of Congenital Diaphragmatic Hernia. This listserv is for organization founders, presidents and CEO’s to keep each other abreast of research studies, new procedures, and organization problems. By working together as a team we can support each other, and the babies and families, in the fight against CDH.

These are the CDH organizations that truly support these babies and work together. We are a large Global CDH community working to increase research, make sure that all families have information and support and protect CDH awareness so that it belongs to all.

Each organization in ACDHO is equal, there are no leaders. Organizations / groups / sites invited into ACHO have shown high integrity in helping CDH families, offer research or support for CDH and a clear desire to work with the entire CDH community. Invitations are by a majority vote to secure that ACDHO goals remain positive, that the group works well together and that ACDHO is a safe environment to work together to help CDH families.

This listserv / alliance is *not* for individual CDH parents, survivors, etc. Please join the various groups and organizations for CDH information, support, research and awareness that offer services at the member level for CDH families.

Organizations / sites / groups that are members or who have been invited and that show a high degree of integrity in helping the CDH community and that we support are:

CHERUBS
CHERUBS Australia
CHERUBS UK
CHERUBS Mexico
A Rainbow of Hope
Jack Ryan Gillham Foundation
Olivia Raine Foundation
Cody’s Foundation
Kays Kids / Real Hope For CDH
Johns Hopkins Unnamed CDH Group
Little Lambs
The J.C. Nicholson II Research Foundation
En Stitching Hernia Diafragmatica (The Netherlands)
Ernia Diaframmatica Congenita gruppo di supporto (Italy)
Association Hernie Daphragmatique (France)
International CDH Study Group
Toronto Children’s Hospital CDH Clinic
UCSF Fetal Treatment Center
Boston Children’s Hospital / Harvard University CDH Clinic
CHOP CDH Clinic
Wisconsin Children’s Hospital
Vanderbilt Children’s Hospital
St. Louis Children’s Hospital / Washington University CDH Research
University of Florida, Shands, CDH Clinic

Please show your support to these groups and organizations who support CDH families!

“I Own Congenital Diaphragmatic Hernia Awareness” Video

Starring over 300 CDH families in the fight against the trademark on “Congenital Diaphragmatic Hernia Awareness” filed by Breath of Hope, Incorporated.

http://www.ipetitions.com/petition/cdhawareness/
http://ttabvue.uspto.gov/ttabvue/v?pno=92050284&pty=CAN&eno=2
http://www.cdhsupport.org
http://www.cdhresearch.org

The Alliance of Congenital Diaphragmatic Hernia Organizations

CHERUBS is proud to be a member of ACDHO (The Alliance of Congenital Diaphragmatic Hernia Organizations). ACDHO was formed to build a stronger CDH community, with emphasis on working together in a professional and supportive manner, encouraging CDH Awareness and fighting against the ownership of it, increasing CDH Research and mostly to collectively offer CDH Families the most support possible.

The following organizations also honor such a high code of ethics and we are so happy that they are in existence helping in this fight against CDH:

CHERUBS
CHERUBS Australia
CHERUBS UK
CHERUBS Mexico
Rainbow of Hope
Jack Ryan Gillham Foundation
Olivia Raine Foundation
Kays Kids / Real Hope For CDH
Johns Hopkins Unnamed CDH Group
Little Lambs
En Stitching Hernia Diafragmatica (The Netherlands)
Ernia Diaframmatica Congenita gruppo di supporto (Italy)
Association Hernie Daphragmatique (France)

CDH Study Group
Boston Childrens CDH Clinic

CHERUBS has been working with many of these organizations for years and some are very new. We have also been working with all CDH clinics and fetal care centers since the first one opened it’s doors in San Francisco in the early 1990’s. Of course there are more CDH clinics and hospitals who are involved and supportive as well! And we all have 1 thing in common – the desire to help families dealing with Congenital Diaphragmatic Hernia without any competition amongst each other, any ulterior motives and the drive to see “Congenital Diaphragmatic Hernia Awareness” given back to the families and researchers.

This is what Congenital Diaphragmatic Hernia Support is all about and we are so proud to be a part of it!

Congenital Diaphragmatic Hernia Newsletter

We just uploaded the latest issue of CHERUBS newsletter –

http://www.cdhsupport.org/newsletter/Winter09SilverLining.pdf






Update – “Congenital Diaphragmatic Hernia Awareness” Trademark

Update:

On April 1, 2008, Elizabeth Doyle-Propst, CEO of Breath of Hope, Inc, filed a trademark request with the United States Patent and Trademark Office to own the rights to the phrase “Congenital Diaphragmatic Hernia Awareness” and a logo of a turquoise ribbon. This request was initially denied. It was resubmitted without the logo and went onto the Supplemental registry on September 17, 2008. Preceding and following this registration, Breath of Hope, Inc. filed complaints and sent threatening correspondence to other CDH organizations and families who used the term “Congenital Diaphragmatic Hernia Awareness”.

On December 4, 2008, CHERUBS filed a Petition to Cancel with the United States Patent and Trademark Office against the trademark “Congenital Diaphragmatic Hernia Awareness”.

It is our goal, along with 7 other CDH organizations and over 4000 CDH families and medical care providers who signed an on-line petition, that this trademark be canceled so that all people affected by Congenital Diaphragmatic Hernia be able to raise awareness without the threat of lawsuits. Congenital Diaphragmatic Hernia is a severe, and often deadly, birth defect that affects over 1600 babies each year in the United States alone and it would be extremely detrimental for one person or organization to dictate who can raise awareness for this birth defect. Because threats and complaints have been filed in the past and recently by Breath of Hope, Inc against organizations and persons using the term “Congenital Diaphragmatic Hernia Awareness”, we felt that we had no choice but to stand up for CDH families and to fight for their rights to raise awareness.

It is our sincere hope that the United States Patent and Trademark Office will see that it is in society’s best interest to cancel this trademark. We also hope that Breath of Hope, Inc and Elizabeth Doyle-Propst will refrain from any further attempts to harm members of the CDH community and will handle this matter in a mature, professional, non-vindictive and compassionate manner and put CDH families and their awareness rights first and foremost – as should be the behavior of any non-profit organization for families affected by Congenital Diaphragmatic Hernia.

http://ttabvue.uspto.gov/ttabvue/ttabvue-92050284-CAN-1.pdf

http://ttabvue.uspto.gov/ttabvue/v?pno=92050284&pty=CAN&eno=2

Petition against the “Congenital Diaphragmatic Hernia Awareness” Trademark is located at http://www.ipetitions.com/petition/cdhawareness/index.html

Alliance of Congenital Diaphragmatic Hernia Organizations

CHERUBS is extremely proud to be a member of ACDHO (Alliance of Congenital Diaphragmatic Hernia Organizations), CDH organizations and foundations working together to help families affected by Congenital Diaphragmatic Hernia.

ACDHO

ACDHO