2009 Congenital Diaphragmatic Hernia Awareness, Events, Fundraiser and more at CHERUBS

Our latest issue of our newsletter will be out in a few weeks but I wanted to let you know about all the activities we have going on at CHERUBS! 2009 is a very, very busy year here with events going on around the world, including our 2009 International Member Conference in San Antonio, TX in July. I hope to see you all there!

March, 2009

March 16, Texas Bake Sale – Corpus Christi, TX. You can reach Melissa at 361-288-4698. http://txcherubs.wordpress.com/

March 28, Oakland Academy in Portage, MI Spring Carnival fundraiser. You can reach Amy at ame_amers@hotmail.com

Friends of Faith Book Drive – Michigan (but you can participate from anywhere). You can reach Amy at ame_amers@hotmail.com

April, 2009

Michigan JayCee’s Event – Contact Darcy for more info or Barb at bwagner@cherubs-cdh.org

CHERUBS UK Pub Crawl – April 11, Melanie Parsons http://www.facebook.com/event.php?sid=5b487216f38310cadf3be1f4321ad462&eid=71341216080

North Carolina Get-Together – in Raleigh, NC. Informal Chuck E. Cheese get-together for local NC families and to help plan the various NC events we have going on! You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129 http://nccherubs.wordpress.com/

May, 2009

Grayton’s Glory 5K Run – May 9 in Alabama. You can reach Leigh for more information at leigh.creekbaum@ubs.com

Michigan Member Bowl-a-Thon – May 17 in Flint, Michigan. You can reach Barb at bwagner@cherubs-cdh.org or 810-845-8480

Day of Prayer for CDH – May 17 around the world! You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129

North Carolina Walk for Cherubs – May 17 in Raleigh, NC. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129. http://nccherubs.wordpress.com/

NC Balloon Release for Cherubs – May 17 in Raleigh, NC. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129. http://nccherubs.wordpress.com/

CHERUBS Ebay Auctions – around the world. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129

June, 2009

2009 UK Conference – in Great Britain. You can reach Brenda at blane@cherubs-cdh.org or 0800 731 6991. http://www.uk-cherubs.org.uk/

Pennsylvania Get-Together – You can reach Kate at kcrawford@cherubs-cdh.org or 412-414-7073. http://pacherubs.wordpress.com/

July, 2009

Shelby’s Summertime CHERUBS Celebration – July 11 in Indiana, contact Stephanie Olivarez at solivarez@cherubs-cdh.org

2009 International Member Conference – July 22-25, San Antonio, Texas! You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129. http://www.cherubsconference.org

August, 2009

Ohio Get-Together – in Columbus, OH. You can reach Tara at thall@cherubs-cdh.org or 614-275-0858. http://cherubs-ohio.wordpress.com/

September, 2009

Jeremiah’s Car Show – in Columbus, Ohio. You can reach Sarah at sdeskins@cherubs-cdh.org or 419-512-3446. http://cherubs-ohio.wordpress.com/

October, 2009

2009 Australia Conference – in Australia. You can reach Danielle at dkessner@cherubs-cdh.org or 03 5135 6999. http://www.cdh.org.au/

New England Get-Together – in Salem, Massachusetts. You can reach Corin at cnava@cherubs-cdh.org or 401-524-9182. http://newenglandcherubs.wordpress.com/

Gabe’s Bowl-a-Thon – in Cranston, RI. You can reach Corin at cnava@cherubs-cdh.org or 401-524-9182. http://newenglandcherubs.wordpress.com/

CHERUBS Masquerade Angel Ball – October 30, 2009 at Duke Gardens in Durham, NC. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129. http://www.cherubsangelball.org

December, 2009

National Children’s Memorial Day – December 13, 2009 at 7:00 pm around the world

New England Truffle Sale – in Rhode Island. You can reach Corin at cnava@cherubs-cdh.org or 401-524-9182. http://newenglandcherubs.wordpress.com/

January, 2010

Shannon Crawford CDH Spaghetti Dinner – January 16, 2010 in Elizabeth, Pennsylvania. You can reach Kate at kcrawford@cherubs-cdh.org or 412-414-7073. http://pacherubs.wordpress.com/

Blood Drive in Memory of Shane Torrence – January 28, 2010 in Wake Forest, NC. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129. http://nccherubs.wordpress.com/

February, 2010

Valentine’s Day Cherubs Fundraiser – February 14, 2010 around the world. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129

April, 2010

CHERUBS Golf Tournament – Wake Forest, NC. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129. http://www.cherubsgolftournament.org

July, 2010

2010 International Member Conference in San Francisco, California. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129. http://www.cherubsconference.org

October, 2010

CHERUBS Masquerade Angel Ball – October 29, 2009 at Duke Gardens in Durham, NC. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-690-0129. http://www.cherubsangelball.org

Congenital Diaphragmatic Hernia Forums

We have dozens of forums at CHERUBS for CDH families and medical care providers. There are over 2600 registered families and medical care providers, 100’s of topics and over 39,000 posts! You can’t find more CDH information and support than that! 🙂

http://www.cdhsupport.org/members

Only 5% of our forums are public so make sure to sign up to see all the great information and support! Membership is free.

There is an approval process which can take up to 48 hours so make sure to fill out your form thoroughly to speed up the process. All information is 100% confidential and is not given or sold to anyone or any other group or business. We value our members’ privacy and safety, which is why we verify each new member. Information on your membership form is also used for CDH Research so you not only get wonderful information and support but you help CDH research as well!

Our Forums (Public ones marked – all others are members only)


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Yes, YOU can make a difference in the fight against CDH! Creative ways to volunteer, info on where donations are needed most, our Angels for CHERUBS Program and much more!

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Polls, helping us with printed materials, donation lists, new siblings, etc

Meet Our Cherubs

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Stories of surviving CDH patients already printed in our newsletter, “The Silver Lining” and our book, “Stories of Cherubs” Please do not post your stories here (we’ll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.

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Introductions
EVERYONE please introduce yourself & meet other parents here! This forum is now used to replace our old Main Listserv.

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Forum for parents Expecting CDH babies

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Meet the families of other surviving cherubs

Meet Other Grieving Parents
Forum for those who have lost their cherubs

Parents Who Chose To Let Go Early
A judgement-free place for those that chose to terminate a CDH pregnancy

Dad’s Place
A place for dad’s to talk about CDH or sports or whatever they want.

Grandparent’s Gathering
Grandparents have a double-dose of worry to deal with; worrying and sometimes grieving their cherubs and worrying and want to make it all ok for their children who are the parents of their cherubs. Here they can support each other and offer advice and info.

Kid’s Korner
Place for kids 10 and over to talk to other cherubs and siblings.

Expecting Babies After CDH
Having children after having a child with CDH

Trying To Conceive
Trying to have another baby after dealing with CDH (survivors & non-survivors)

Marriage & Relationship Issues
Having and/or losing a very sick child can wreck havoc on even the strongest relationships. Here you can talk without judgement and hopefully gain some info and support to help .

Inspirational Words
Inspirational stories, quotes and poetry. Please reference authors!

Prayer Requests
Prayer and well-wishes requests for CDH patients having trouble, family and friends and all other prayer requests

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For discussions other than CDH. Laugh about your kids antics, cry about losing a loved one, vent about your boss… just respect the site rules and you can write about anything here.

More Medical Info & Support

In Utero Procedures
For families of cherubs who had in utero repair, tracheal ligation or other in utero procedures

CDH & ECMO
Dealing with CDH and Extracorporeal Membrane Oxygenation machines.

Feeding Issues
Dealing with oral aversions, NG-tubes, G-tubes, Mic-Key buttons, feeding therapies, etc

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Dealing with developmental delay, cerebral palsy or other cranial, cerebral or behavioral issues

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Dealing with asthma, lung function tests, vent or oxygen dependency, and other lung issues.

CDH & Syndromes
Dealing with CDH and syndromes or chromosomal abnormalities

Multiple Births
CDH within mulitples – twins, triplets, quintuplets, etc

Other Medical Issues
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Growing up after having CDH is still an uncharted territory. Here you can talk to other parents about dealing with puberty, playing sports, having children of their own and much more.

More Than 1 Cherub
Families dealing with more than 1 CDH baby (2% odds)

Medical Care & Insurance Praises / Comments
Parent opinions on hospitals / doctors / nurses and other medical care providers.

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Medical conferences, grieving parent conferences, etc

CDH Research

Research and info on Congenital Diaphragmatic HerniaResearch Studies (Public)
Research Studies actively recruiting CDH patients / families

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Research papers, articles, and more – also see Research Links!

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CHERUBS Volunteers

Meet our wonderful volunteers and learn how you too can help at CHERUBS!Meet Our Wonderful Volunteers!

Volunteer Comments, Recruitment and Information
Want to praise your state rep or find out who to thank for that holiday card? Want to see what positions need to be filled? Here is the info! 🙂