“I Own Congenital Diaphragmatic Hernia Awareness” Video

Starring over 300 CDH families in the fight against the trademark on “Congenital Diaphragmatic Hernia Awareness” filed by Breath of Hope, Incorporated.


Legal Happenings At CHERUBS

Hi Everyone,

I wanted to update you on CHERUBS legal happenings….

CHERUBS had a pro bono attorney for the personal restraining order I had to take out against Elizabeth at Breath of Hope in 2006 I believe. Long story, not going into that as that’s not what this post is about.

CHERUBS had 3 pro bono lawyers from 2 law firms helping us on the trademark and a few additional tossing us advice here and there. HUGE help! But 1 law firm doesn’t have the manpower to give us anymore and the other is about to take over a much bigger project for us.

So that leaves me to deal with the trademark issue legal stuff alone. And to be honest, I have no clue what I’m doing. The stress of having 1000’s of people depend on me and CHERUBS to protect Congenital Diaphragmatic Hernia Awareness is enormous. I don’t want to mess this up. I need help. If you know of a trademark attorney who will help us, please let me know. They can be in any state as this is a federal issue. Please help if you can – these babies deserve to have the best representation to protect their rights. I am not that person to do that job, I am not qualified and I will not post that I am a legal expert or I am so intelligent that I don’t need a lawyer. I am bound to make some mistakes doing this alone (well, not alone – our Board is a huge help!), but we cannot afford to make mistakes. Taking on a trademark is not a small thing at all. This trademark is a huge ordeal, one that has to be stopped.

So that leads me to another notice. I will be taking down the timeline for a while. I will not be posting about any legal issues. I will no longer be keeping you updated on Elizabeth’s attacks or false allegations, slander, filings against CHERUBS with various agencies, etc. If you want updates on the trademark, you can go through the petition site to see the updates at the USPTO. Why, you ask?

For the first 3 years all this was going on, we kept quiet about it. Ignoring it did not help matters, it only enabled her and made her bolder. It got worse, so much worse that the restraining order was filed.

Then we went public, because other CDH parents were now being attacked and Elizabeth was filing accusations to try to have CHERUBS shut down. That was 2 years ago. You all have been pretty updated since.

But now, I am stepping back on the legal stuff and handing it all over to our new 2 pro bono lawyers to deal with. Whatever they deem necessary to do to stop the attacks, they have our blessing. Any court proceedings, filings, government intervention, criminal charges, etc – they have our blessing. 5 years of this is enough. It’s time to deal with this all once and for all and let the CDH community have some peace. We can’t thank our new lawyers enough, they are angels to help the CDH community this way!!!

And we can get back to supporting families dealing with Congenital Diaphragmatic Hernia and stop dealing with all Elizabeth’s drama and attacks. Too many CDH parents were put under the impression that CHERUBS is only about drama and stopping Elizabeth. That couldn’t be farther from the truth…. our site is drama free, we offer dozens of free services, the most CDH information on the net and with over 2700 families we offer the most support! 🙂 We’ve been here for 14 years with only one goal – helping families affected by CDH.

Now, we still have the trademark issue to deal with!!! I am still working on that video and we will release it this week. At the least, it will raise awareness! But we still need a lawyer! If you know a lawyer or you really want to help and just call lawyers and ask them to help us…. we would appreciate it so much!!!

Congenital Diaphragmatic Hernia Awareness Trademark – Court Begins

Court starts tomorrow everyone!!!

I’d like to ask you all to please say a prayer that Breath of Hope, Inc will help to resolve this trademark issue peacefully and also I’d like to ask everyone to please use the Congenital Diaphragmatic Hernia Awareness Ribbon in your on-line profiles (Facebook, Myspace, Blogs, etc) tomorrow to show unity against the trademark on Congenital Diaphragmatic Hernia Awareness. Raise a little awareness while trying to save CDH awareness. 🙂

If you need a ribbon you can use any posted here or you can have a personalized one made by sending your cherub’s photo, name and date(s) to ribbons@cherubs-cdh.org

1:00 pm EST tomorrow, February 11, 2009 …. please say prayers for all CDH families that this drama may end.

How else can you help?  Sign the petition and invite family and friends to sign.


Ask Breath of Hope, Inc and it’s board members why this trademark and attacking other CDH organizations and parents with legal threats is necessary.  Under their “company profile” you can see their current Board of Directors:

Elizabeth Doyle-Propst (CEO, Primary Director) – elizabeth@breathofhopeinc.com
Marsha McInnis (Director) – marsha@breathofhopeinc.com
Rick Bryant (Director) – rick@breathofhopeinc.com
Jennifer Luning (Director) – jennifer@breathofhopeinc.com
Jean Ashner (Director) – jean@breathofhopeinc.com
Holly Centurino (Director) – holly@breathofhopeinc.com

We suggest finding other ways to contact the board (Myspace, Facebook, personal e-mail) as there is no guarantee that their BoH e-mail addresses are real or that mail is not filtered by the CEO.  This has been suggested by former BoH Board Members.  We will not post their private e-mail addresses.

Thank you everyone for your support throughout this ordeal and for all you are doing to help CDH families!!!