Cherubs On Their Way

The following babies are expected soon. They have all been diagnosed with Congenital Diaphragmatic Hernia. Please keep them and their families in your prayers.

Jon Lee S. – Due 2009-04-11
Andrew Lee Whitten – Due 2009-04-17
Gabriela Monteiro – Due 2009-05-14
Avery Mae Keirsey – Due 2009-05-15
Giavanna Digregorio – Due 2009-06-12
Baby Clarketimmins – Due 2009-06-15
James Reeve 2009-06-15
Cameron Zane Redmon 2009-06-20
Baby Price – Due 2009-06-21
Eli Camden Harvey – Due 2009-06-24
Baby Slager – Due 200907-02
Gabriella Morgan Groenewald – Due 2009-07-05
Baby Brogden – Due 2009-07-06
Kamryn Hope Studdard – Due 2009-07-08
Jacob Thomas Zimmerman – Due 2009-07-18
Ireland Rose B – Due 2009-08-23
Jonathan Louis Moehl – Due 2009-09-13
Makayla Jackson – Due ???
Amy Marie Meyers – Due ???

**this is only a list of those cherubs whose parents gave us permission to publish their names. There are many more babies on their way and this list does not include all the many, many newborn cherubs already here.

“I Own Congenital Diaphragmatic Hernia Awareness” Video

Starring over 300 CDH families in the fight against the trademark on “Congenital Diaphragmatic Hernia Awareness” filed by Breath of Hope, Incorporated.

http://www.ipetitions.com/petition/cdhawareness/
http://ttabvue.uspto.gov/ttabvue/v?pno=92050284&pty=CAN&eno=2
http://www.cdhsupport.org
http://www.cdhresearch.org

Why CHERUBS will *not* be participating in Congenital Diaphragmatic Hernia Awareness Day

Because of the legal and ethical issues behind “Congenital Diaphragmatic Hernia Awareness Day” and the fact that proclamations gathered by CDH families for this day were used in the registering of the “Congenital Diaphragmatic Hernia Awareness” trademark, CHERUBS gracefully chooses to decline to support this event.

http://www.ipetitions.com/petition/cdhawareness/

We respect the rights of our members and all CDH families to celebrate CDH Awareness on March 31 but in good conscience, we can not support this event or the organizations behind it.

Instead, CHERUBS chooses to support CDH families and awareness every day, by everyone. Freely. CHERUBS wishes to support the organizations and families who work hard, all year round, to stand up for our children and make sure that their rights and their memories are respected:

CHERUBS Australia
CHERUBS UK
Kays Kids
Jack Ryan Gillham Foundation
Little Lambs
Olivia Raine Foundation
Rainbow of Hope
CHERUBS

Let’s all show our support of these babies and the organizations and medical care providers who work hard to protect them and help them all year round.

Congenital Diaphragmatic Hernia Newsletter

We just uploaded the latest issue of CHERUBS newsletter –

http://www.cdhsupport.org/newsletter/Winter09SilverLining.pdf






CHERUBS National Children’s Memorial Day Tribute


National Children’s Memorial Day is December 14th. At 7:00 pm in each time zone, people will be lighting candles to remember all children lost.

Over 800 babies are lost to CDH in the United States alone. We remember all the families who mourn their children from Congenital Diaphragmatic and those who mourn their children lost from other circumstances.

Please take a moment to visit our site and scroll through the names of our cherubs with wings. http://www.cdhsupport.org

If you would like your cherub’s name added or removed, please e-mail me at dawn.williamson@cherubs-cdh.org

Update – “Congenital Diaphragmatic Hernia Awareness” Trademark

Update:

On April 1, 2008, Elizabeth Doyle-Propst, CEO of Breath of Hope, Inc, filed a trademark request with the United States Patent and Trademark Office to own the rights to the phrase “Congenital Diaphragmatic Hernia Awareness” and a logo of a turquoise ribbon. This request was initially denied. It was resubmitted without the logo and went onto the Supplemental registry on September 17, 2008. Preceding and following this registration, Breath of Hope, Inc. filed complaints and sent threatening correspondence to other CDH organizations and families who used the term “Congenital Diaphragmatic Hernia Awareness”.

On December 4, 2008, CHERUBS filed a Petition to Cancel with the United States Patent and Trademark Office against the trademark “Congenital Diaphragmatic Hernia Awareness”.

It is our goal, along with 7 other CDH organizations and over 4000 CDH families and medical care providers who signed an on-line petition, that this trademark be canceled so that all people affected by Congenital Diaphragmatic Hernia be able to raise awareness without the threat of lawsuits. Congenital Diaphragmatic Hernia is a severe, and often deadly, birth defect that affects over 1600 babies each year in the United States alone and it would be extremely detrimental for one person or organization to dictate who can raise awareness for this birth defect. Because threats and complaints have been filed in the past and recently by Breath of Hope, Inc against organizations and persons using the term “Congenital Diaphragmatic Hernia Awareness”, we felt that we had no choice but to stand up for CDH families and to fight for their rights to raise awareness.

It is our sincere hope that the United States Patent and Trademark Office will see that it is in society’s best interest to cancel this trademark. We also hope that Breath of Hope, Inc and Elizabeth Doyle-Propst will refrain from any further attempts to harm members of the CDH community and will handle this matter in a mature, professional, non-vindictive and compassionate manner and put CDH families and their awareness rights first and foremost – as should be the behavior of any non-profit organization for families affected by Congenital Diaphragmatic Hernia.

http://ttabvue.uspto.gov/ttabvue/ttabvue-92050284-CAN-1.pdf

http://ttabvue.uspto.gov/ttabvue/v?pno=92050284&pty=CAN&eno=2

Petition against the “Congenital Diaphragmatic Hernia Awareness” Trademark is located at http://www.ipetitions.com/petition/cdhawareness/index.html